There are four of us: four sisters. I am the eldest, followed by Emily and two more. Growing up in our house, Down syndrome was nothing more than a birthmark, a blemish, in the chaotic mix of us all.

Now we are grown. I am a writer, a mother, a wife. I am a sister. I am currently documenting my sibling experience and this is a place for me to explore, share and brainstorm as I do.

I also blog about all things motherly at motherwho.wordpress.com.

Lovely to meet you.


10 thoughts on “about

  1. leticia says:

    Hey Lucy, congratulations! These notes are lovely. I’m so excited by the prospect of Wade packing his bags and heading off to Bali with his wife one day too. Your sister sounds beautiful. More please….

  2. Hannah says:

    Hi Lucy,
    I just found my way here from your guest post on mummalove and I had to say these letters are beautiful. I can only hope that I am giving my children the chance to build the type of relationship you seem to have with Emily. I hope Maiya sees Flynn for all that he is, rather than just his extra chromosome. Thank you for sharing. Hannah

    • lucy says:

      Hi Hannah, thank you so much for commenting. I’m glad you like the blog, and I’m sure that your two will be wonderful friends as they grow. All the best! 🙂 Lucy x

  3. Elizabeth says:

    Dear Lucy,
    You have such a way with words that really made me see and think about the everyday interactions you write in your letters to Emily.
    You are so lucky to have such a beautiful sister and we are all so lucky to read your words and feel part of the culture change in society.
    I work with adults in mostly supported accommodation services and I often search for thought provoking examples for staff to take a step back and see the person, Emily the woman, not the ‘client’ in the 2nd bedroom in the left. Emily is so lucky to have you in her life to be able to articulate these moments with others.
    I really love the way you write and can’t thank you enough for being able to read this.
    Parents and siblings who read this are so lucky!!!!
    Love Liz B

    • lucy says:

      Liz, thank you so much for commenting. I love what you had to say and agree, there are sometimes wide discrepancies between the ‘clients’ and the ‘people’. I hope you’re well, thank you again! xx

  4. Leslee says:

    Just stumbled upon your blog from a Facebook link. I’ve ready every entry and teared up with each one. I have a 15 year old daughter and 11 year old daughter with Ds. This sibling relationship is so strong and I see it grow and change as they get older. I’m teary with your honesty and how you’re putting into words my hopes and fears from my daughters as I look forward about 10 years. It’s beautiful, how you love, and thank you for sharing. Looking forward to following your journey.

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